LibGuides: Research &amp; Publication in Medicine &amp; Health: DATA MANAGEMENT

Documentation

Project Documentation

Purpose/Rationale for data collection
Methods of data collection
File structure and organization
Data sources
Data validation or quality assurances
Data processing and analyses
Data confidentiality, security and access

Dataset Documentation

Variable names and descriptions
Codes and/or classification systems used
Coding and algorithms used to transform data
Software file formats and versions

Data Services on Campus

New Data Management and Sharing Policy

NEW NIH Data Management and Sharing Policy Goes into Effect January 25, 2023

NIH’s new Data Management and Sharing Policy goes into effect for grants submitted January 25, 2023 and thereafter. This policy means that as of January 25, 2023.

See the NIH DMSP section of this guide for detials.

UIUC Research Data Management Self-Guided Workshop

The Research Data Management (RDS) developed this Self-Guided Data Management Workshop to provide you with much of the information the Research Data Service covers in live workshops and webinars, but in an online format you can access anytime.

The interactive Prezi allows you to move through each of the topics in order, or to chart your own path by clicking on any topic that interests you. At any point, hover over the right margin to reveal the home button that will take you back to the main lifecycle page shown below.

If you would prefer to host a live workshop, please contact us to request one.

Managing your Research Data

A Beginner's Guide to Data Management
Covers the basics and best practices for data management for those new to the research and data-collecting process.
Coursera - Introduction to Data Management Plans
This course will provide learners with an introduction to research data management and sharing.
Data Management Self Guided Workshop
This Self-Guided Data Management Workshop contains much of the information the Research Data Service covers in live workshops and webinars, but in an online format you can access anytime.
DMPTool
This online wizard creates a data management plan to meet the requirements of specific funding agencies (including, but not limited to, the National Science Foundation). Prompts for the home institution and funding agency, and suggests text for each section of the plan.
FAIR Principles for data management and stewardship
In 2016, the ‘FAIR Guiding Principles for scientific data management and stewardship’ were published in Scientific Data. The authors intended to provide guidelines to improve the Findability, Accessibility, Interoperability, and Reuse of digital assets.
Glossary of data management terms
From Cornell University - This glossary is not meant to be comprehensive; rather, we offer definitions for selected terms we've used elsewhere on this website.
Life-Cycle Decisions for Biomedical Data
Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data.
Research Data Management@ Harvard
A reference guide with information and resources to help you manage your research data
USGS Data Management Plans

Basic Elements of a Data Management Plan

A data management plan (DMP) is a living document that requires updates to reflect changes or adjustments to data collection, storage and processing.

Types of data that will be collected

What types of data will be derived or generated?
How much? - numbers & file sizes
Rationale for sharing and preservation
Metadata and other documentation (protocols, instrumentation)
Privacy and Security (human studies data)

Tools, Software, Code

Specialized tools or software needed for data manipulation

Standards

Metadata (Dublin Core, Darwin Core, etc.)
Formats
Identifiers
Other

Data Preservation & Access

What data will be preserved, where and for how long?
How will data be findable?
Restricted or Open Access

Data Sharing Agreements and Licenses

Restrictions
Liability

Oversight

Roles & Responsbilities

About Data Management and Sharing Plans

Budgeting for Data Management & Sharing
Find out what data sharing related costs may be requested in an application for funding.
Data Management
Learn about best practices for scientific data management.
DMP Best Practices
These are best practices to consider while working on your DMP.
NIH Data Sharing Policy
NEWS: New NIH Policy on Data Management and Sharing (effective January 25, 2023)
NIH has issued a new Final NIH Policy for Data Management and Sharing, which will require NIH funded researchers to prospectively submit a plan outlining how scientific data from their research will be managed and shared. On January 25, 2023, the new policy will come into effect and replace the 2003 NIH Data Sharing Policy currently in effect.
Scientific Data Sharing
NIH Policies and more
Supplemental Information to the NIH Policy for Data Management and Sharing
Elements of an NIH Data Management and Sharing Plan

Plan Templates and Examples

NOTE: Your Plan must reflect the details in your proposal, so examples are provided only in order to help investigators see what a strong Plan looks like. Do not copy the text verbatim.

University of Illinois Policies & Resources

Data Safety Ponitoring Plans
When appropriate the research plan makes adequate provision for monitoring the data collected to ensure the safety of subjects. (45 CFR 46)
Cloud-Based Storage of Protected Health Information
Box is now available for storing Protected Health Information. Individuals who would like to use Box to store PHI, may only do so in a provided Box Health Data Folder. A request for a Box Health Data Folder can be submitted here. Researchers are responsible for following set policies and guidance listed at the previous webpage.
Data Security and Full Disk Encryption
Full disk encryption (FDE) helps prevent unauthorized access to data stored on a device if that device is lost or stolen. As of January 1, 2013 all University owned laptops must be encrypted with FDE, per the laptop standard.